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Who We Are

Hi! We're a group of Christian Moms and Caregivers whose kids need help from mechanical ventilation to breathe. Our kids range in age from infants to young adults, and are on ventilators for a variety of reasons. Some have autonomic disorders like CCHS and ROHHAD. Others have a brain tumor, a neuromuscular disease, a Chiari malformation, or a brain or spinal cord injury. Some kids have chronic lung or heart disease. But, no matter what their age, illness, or injury, all of our kids need help to breathe.

Most of our kids have tracheostomy tubes, but some are able to use Non-Invasive modes of ventilation like Bipap ST, Vpap, or curaiss ventilation, and a few have diaphragm pacers.

Many of our kids have multiple medical issues, and may have feeding tubes, braces, wheelchairs, assisted communication devices, or other equipment to help them eat, move, and talk.

Some of our teens and young adults are able to participate in the group themselves. Teens ages 13-17 may participate with a parent's consent. Young adults 18 and over may join as members.

The Kids with Vents Prayer Circle is a place to share your faith, request prayer support, post praise reports, listen to uplifting music, and find encouragement from fellow believers!

Everyone's background and experience is a little different, but we are joined in our belief that Jesus is the Son of God, that he died to save us, and that our strength comes from Him.

We welcome you to the
Kids with Vents Prayer Circle, and hope you will find many friends here!


Showing posts with label Praise Reports. Show all posts
Showing posts with label Praise Reports. Show all posts

Sunday, October 24, 2010

UPDATES!

I updated the all the posts below to include our new members, new praise reports, and new prayer requests.  If there is anything you would like added, please email me at Kids_with_Vents@yahoo.com.  


Be sure to keep checking the old posts as they do change regularly, and be sure to let me know when you have a praise report or prayer request!

Friday, August 20, 2010

Keep Checking the Praise Reports and Prayer Requests!

Be sure to keep checking the Praise Reports and Prayer Requests frequently!  Even though I am not writing a new post each time something changes, I do update the previous posts nearly every day.  


Also be sure to email me at Kids_with_Vents@yahoo.com with any new requests or reports that you would like added!

Saturday, July 31, 2010

PRAISE REPORTS

Moriah:
  1. Moriah is fianally HOME!
Danette:
  1. Thanks that Danette's ear tubes were placed successfully even with her anesthesia difficulties, and that the anesthesiologists think an epidural should be possible when her hip replacements are done.
Tabitha:
  1. Thanks that Tabitha did well with her scheduled surgeries, was only in the hospital for three days, and is back home!
Hannah:
  1. Thanks to Marpac (100 pediatric trach ties), BryanMedical (four peds trach tubes), and Newport ( four reusable vent circuits and a year's supply of vent filters) for being God's hands with their generous corporate donations!
  2. Thanks to all our wonderful Kids with Vents members who are donating supplies and money to cover the overseas shipping to get everything to Hannah.
  3. Thanks to Lailani for organizing all the supplies and shipping.

Thursday, July 29, 2010

Welcome to the Kids with Vents Prayer Circle Blog!


Welcome fellow prayer warriors!  We have a number of prayer requests already.  A Blog was the easiest way to let all our members and their families, church prayer groups, and friends, etc. see the group's prayer needs.  We won't be posting pictures, locations, or last names, however, for privacy reasons.  


I will edit and add posts as needed to include changes, additions, and praise reports.  Just email me at Kids_with_Vents@yahoo.com with anything you want revised.  There is a music player filled with a variety of Christian music at the bottom of the page. Let me know if there are any other songs that you would like added (and also if there are any you really want removed!)

We are also going to be starting a great program called Blogging through the Bible in 90 days!  Did you know that you can actually read the entire Bible in just 90 days by reading about 12 pages a day?  We will be starting a bit later than most of the other groups to allow time for everyone to get ready, but I will post the daily reading assignment and message as we go along.  We will start on August 15, 2010, and should finish on October 13th!

Have a Blessed Day!