Who We Are
Hi! We're a group of Christian Moms and Caregivers whose kids need help from mechanical ventilation to breathe. Our kids range in age from infants to young adults, and are on ventilators for a variety of reasons. Some have autonomic disorders like CCHS and ROHHAD. Others have a brain tumor, a neuromuscular disease, a Chiari malformation, or a brain or spinal cord injury. Some kids have chronic lung or heart disease. But, no matter what their age, illness, or injury, all of our kids need help to breathe.
Most of our kids have tracheostomy tubes, but some are able to use Non-Invasive modes of ventilation like Bipap ST, Vpap, or curaiss ventilation, and a few have diaphragm pacers.
Many of our kids have multiple medical issues, and may have feeding tubes, braces, wheelchairs, assisted communication devices, or other equipment to help them eat, move, and talk.
Some of our teens and young adults are able to participate in the group themselves. Teens ages 13-17 may participate with a parent's consent. Young adults 18 and over may join as members.
The Kids with Vents Prayer Circle is a place to share your faith, request prayer support, post praise reports, listen to uplifting music, and find encouragement from fellow believers!
Everyone's background and experience is a little different, but we are joined in our belief that Jesus is the Son of God, that he died to save us, and that our strength comes from Him.
We welcome you to the Kids with Vents Prayer Circle, and hope you will find many friends here!
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