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Who We Are

Hi! We're a group of Christian Moms and Caregivers whose kids need help from mechanical ventilation to breathe. Our kids range in age from infants to young adults, and are on ventilators for a variety of reasons. Some have autonomic disorders like CCHS and ROHHAD. Others have a brain tumor, a neuromuscular disease, a Chiari malformation, or a brain or spinal cord injury. Some kids have chronic lung or heart disease. But, no matter what their age, illness, or injury, all of our kids need help to breathe.

Most of our kids have tracheostomy tubes, but some are able to use Non-Invasive modes of ventilation like Bipap ST, Vpap, or curaiss ventilation, and a few have diaphragm pacers.

Many of our kids have multiple medical issues, and may have feeding tubes, braces, wheelchairs, assisted communication devices, or other equipment to help them eat, move, and talk.

Some of our teens and young adults are able to participate in the group themselves. Teens ages 13-17 may participate with a parent's consent. Young adults 18 and over may join as members.

The Kids with Vents Prayer Circle is a place to share your faith, request prayer support, post praise reports, listen to uplifting music, and find encouragement from fellow believers!

Everyone's background and experience is a little different, but we are joined in our belief that Jesus is the Son of God, that he died to save us, and that our strength comes from Him.

We welcome you to the
Kids with Vents Prayer Circle, and hope you will find many friends here!


Thursday, July 29, 2010

Standing in the Gap



Standing In The Gap


We'll stand in the gap for our special kids
We'll stand till the victory's won
This one thing we know, that You love them so
And your work with our children is not done
We'll stand in the gap every day
And there we will fervently pray
And Lord, just one favor, don't let us waver
If things get quite rough, which they may 
We'll never give up on these kids
Nor will You for You promised them joy
For we know it was true, when they said "Yes" to You
Though the enemy seeks to destroy 
We'll not quit as we intercede
For You are their Savior indeed
Though it may take years, We give you our fears
As we trust every moment we plead 
And so in the gap we will stand
Heeding your every command
With help from above, We unconditionally love
And soon they will reach for your hand.

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