UPDATES!

I updated the all the posts below to include our new members, new praise reports, and new prayer requests.  If there is anything you would like added, please email me at Kids_with_Vents@yahoo.com.  

Be sure to keep checking the old posts as they do change regularly, and be sure to let me know when you have a praise report or prayer request!

Keep Checking the Praise Reports and Prayer Requests!

Be sure to keep checking the Praise Reports and Prayer Requests frequently!  Even though I am not writing a new post each time something changes, I do update the previous posts nearly every day.  


Also be sure to email me at Kids_with_Vents@yahoo.com with any new requests or reports that you would like added!

Pastor Michael Keen

Hello everyone! My name is Pastor Michael Keen. Please call me Michael. I am 34 years old and have Duchenne Muscular Dystrophy, or DMD for short. I wasn't "officially," diagnosed until I was 13. By that time I had already began using a power wheelchair because I was too weak to push a manual chair any longer.

I lived with my parents until I was 21 years old.  At that time I was more determined than ever to make something out of my life despite having DMD.  I moved to Woodrow Wilson Rehabilitation Center and began studing Mental Health/Human Services.  I graduated there in 2001 with an Associates Degree and Certificate in Peer Mediation through Blue Ridge Community College.  I was also married to my wonderful wife Robin by then.

In that same year I graduated Robin and I rented an Apartment in Stuarts Draft, Virginia.  During that time I had lost a great deal of weight.  I also began having breathing difficulties along with severe Central Sleep Apnea.  I began using a BiPap Machine at night and eventually a Pneumobelt in 2003.  In 2005 I was placed on a Trach and Ventilator. 

In that same year we had our own home built in Waynesboro, Virginia.  With the help of the Fannie Mae, Virginia Housing and Development Authority, Waynesboro Housing and Redevelopement, Planters Bank, and HUD Housing, we had our home built ground up around our individual needs.  Our Mortgage Rate was locked down at 4.0% and with Section 8, more that half of our monthly payment was paid.  That means our entire monthly payment stayed around $80-90 per month; this remains the same today.

About 2 years ago, I began to see the annointing God had on my life.  I began taking Online Classes in persuit of a BA in Pastoral Ministries.  The same year I came up with a Concept Christian Ministry for the Disabled.  Today, we are called Spirit Roller Ministries and we are 501c3 Non Profit; we are also an Affiliate with Joni and Friends Ministries.  We have been running a very successful program called MedEvange.  We take used/donated Medical Equipment then we give it away free of charge to the needy.  We also have a Mentoring Service, Couseling, Advocacy and Empowering them with the Word of God.

I am looking foward to being amoung all of you.  I am very honored that Deborah and her mother have asked me to lead Blogging through the Bible in 90 Days.  I have a cell phone (540-324-2503) and you can call me anytime; also, I am on Blogger as Spritroller and Preachy Keen; I am on FaceBook and Twitter as well.  Lastly on the web www.spiritrollerministries.org.  I look forward to being part of your lives!

PRAISE REPORTS

Moriah:

1. Moriah is fianally HOME!

Danette:

1. Thanks that Danette's ear tubes were placed successfully even with her anesthesia difficulties, and that the anesthesiologists think an epidural should be possible when her hip replacements are done.

Tabitha:

1. Thanks that Tabitha did well with her scheduled surgeries, was only in the hospital for three days, and is back home!

Hannah:

1. Thanks to Marpac (100 pediatric trach ties), BryanMedical (four peds trach tubes), and Newport ( four reusable vent circuits and a year's supply of vent filters) for being God's hands with their generous corporate donations!
2. Thanks to all our wonderful Kids with Vents members who are donating supplies and money to cover the overseas shipping to get everything to Hannah.
3. Thanks to Lailani for organizing all the supplies and shipping.

PRAYER REQUESTS

Urgent Requests:

1. Moriah got sick - right after her parents finally got her home from the hospital (after waiting over 2 1/2 years!)  Please pray for Moriah to get well, for her parents to have the energy to keep up her care, and for her to be stay home.
2. Kaitlyn has been in the hospital for over a month battling a shut down of her GI tract and sepsis.  They just found out that she is septic again.  Please pray that she can clear this infection and that her gut starts working again (or that the doctors come up with another plan so she can go home.)
3. Toby has a tethered cord that may or may not be causing a number of problems. The surgery carries certain risks, as does not doing it. Please pray for Carrie and Bruce as they make the difficult decision of whether or not to do the surgery, and where to have it done.  Also, please pray that the timing of the surgery works out just right. 
4. Help and support through the grief of loosing Natalie for the Teegarden family.  If you know the family personally, or have ever read Natalie's Blog http://babygirltee-jennifer.blogspot.com/, please send a postcard with the words "I know Natalie!" to: Natalie Evelyn Teegarden, 120 Parkwood Rd, Rochester, NY 14615
5. Deborah was just diagnosed with two infections (one very serious.) Please pray for her full recovery (including negative cultures), that her GI system tolerates the antibiotics, and that she is able to get the surgeries she needs soon to avoid another aspiration pneumonia.
6. Eithene is in the hospital with an infection and a bunch of complications.  Please pray for a full recovery and that she is home soon.
7. Braden is finally coming home.  Please pray that no complications come up and that he gets to go home on November 16th as planned. 
8. Mandi has AML (leukemia) and has made it through the ablative therapy and the cord blood transplant has engrafted.  Please continue to pray that the transplant is 100% successful, as this is the last treatment available.  Mandi is a fellow Yalie, and an amazing hockey player. One of her nurses told her to "prepare herself mentally and to think of this as the toughest hockey game she has ever yet played.  She is focusing on never giving up during this game and on emerging the winner!!!

For all our Members:

1. Healing
2. Strength
3. Courage
4. Health
5. Finances
6. Grief
7. Loneliness
8. All the other unspoken needs that only our Father knows about.

Christamae:

1. Needs nursing issues worked out quickly for both her and her sister, Danielle, so they can both get the care they need.

Michael:

1. A safe trip to California to participate in a Joni & Friends training event.

Jamie & Evan H: 

1. Guidance and help from God in making the right choices for Evan. 
2. The strength to care for Evan by herself.
3. Nursing care for Evan.
4. For Evan to get the right nutrition and continue to regain lost weight.
5. For Evan to have a great school year.

Erika & Evan W:

1. Personal health issues for Erika.
2. Evan's surgery to fix his foot drop has been postponed until next spring.  The doctor left the decision up to Erika, and she asks us to please pray that she would do the right thing for Evan and that God would give her peace.

Allison & Brett:

1. Continued healing from spinal surgery and complications for Brett.
2. Success in finding a new nurse for two uncovered days.

Carrie & Toby:

1. Success in moving Toby forward in eating textures.
2. Patience and endurance for Carrie in getting Toby to eat by mouth,
3. Wisdom for the medical team working with Toby.
4. Continued success in preschool for Toby.

Danette:

1. Relief from pain.
2. Wisdom for her doctors to figure out a safe way to replace her hips.

MJ:

1. Recovery from all current complications/infections.

Jena & Ryan H:

1. Nursing care for Ryan.

Dani & Ash:

1. That their new nurses work out well.

Vanessa & Josh:

1. Success in RT school for Vanessa.
2. Dependable, quality nursing care for Josh.
3. A smooth and healthy start in Junior High for Josh.

Lucy & Colton:

1. Resolution of Lucy's serious shoulder problems so no further surgery is needed.
2. A definitive diagnosis for Colton and wisdom for his doctors in how to treat him.
3. All required special equipment and supplies approved and delivered quickly.

Patricia & Deborah:

1. A full recovery from the two infections with which Deborah was just diagnosed.
2. That Deborah is able to get the surgeries she needs done at one time by the best surgeon possible.
3. Treatment for past medical trauma and coordination of care for future procedures to avoid further trauma.
4. That all Deborah's current nurses continue to work out well, and that we are able to get the two days that opened up filled with a great nurse.
5. Deborah's continued progress in OT and PT.
6. Successful graduate school admissions for Deborah & success in getting Vocational Rehab to pay the full cost of the program.
7. Finding a job soon for Patricia (one with a good work environment and flexible hours) and Trusting God to provide for all our needs in the meantime.

Braden:

1. Getting all the supplies delivered and all nursing hours covered so Braden can finally come home on November 16th.

Nick:

1. Help in finding the right nurses/aides to provide the care he needs.
2. Finding the perfect ENT doctor to treat him, healing of his trach stoma and relief from pain.
3. Recovery from past medical trauma and better care for future procedures to avoid further trauma.

Sydney:

1. The perfect equipment for her to be able to get around independently, play, and interact with others while on the vent.

Kira:

1. That Kira and Christian continue to love their new school.
2. Continued success in 1st grade.

Moriah:

1. Success in remaining stable while sprinting off the vent.  Moriah has had some set backs in sprinting off the vent, and has had to go back on the vent 24/7 several times.
2. Getting to finally come home!

Joseph:

1. Continued success with his new kidney.

Additional Kids:

1. Shea - Remission from JRA (she's started a new med that should help her.)

KIDS, TEENS, & YOUNG ADULTS

All our Kids with Vents Kids, Teens, and Young Adults need to be lifted up in Prayer:

CHILDREN
Aaron
Amanda
Ash
Braden
Brett

Carmen
Colt

Colton

Danielle
Eithene
Evan W.

Hannah
Hunter

Jaron
Joseph
Kaitlyn
Kamilah
Katrina
Kira
Kira Fae
Lauren

Lucas
Megan
Moriah

Mya
Noah
Nicholas

Sophie (OH)

Sophie (UK)

Sydney

Tabitha

Toby

Zoe

TEENS
Dani
Evan H.

Josh

Ryan S.
Sarah

YOUNG ADULTS
Andrew
Becky
Catherine
Christamae
Danette

Deborah
Joe

Kimi

Mark
Michael
Mike

MJ

Nick

ANGELS

Kyle

Natalie

Ryan

Taleah

MOMS, DADS, & CAREGIVERS

All our Kids with Vents Moms, Dads, and Caregivers need to be covered in Prayer:

Alex
Allison
Amanda
Ami
Annette
Anthony

Brenda

Burke

Carrie

Cherylynn

Cindy

Corey
Crystal

Erika
Frederick

Jackie

Jamie

Jena
Jennifer P.
Jennifer T.

Jerilynn
Jessica
Joan
Joseph
Kara

Kimberley
Krista
Linda

Lisa

Liz

Lucy
Lynn
Martha
Mary
Megan
Melinda
Michelle

Monica

Patricia
Penny

Rosa
Sarah
Sharon
Sheila
Stephanie

Sue
Tabbie

Teresa

Vanessa
Victoria

Standing in the Gap

Standing In The Gap

We'll stand in the gap for our special kids
We'll stand till the victory's won
This one thing we know, that You love them so
And your work with our children is not done

We'll stand in the gap every day
And there we will fervently pray
And Lord, just one favor, don't let us waver
If things get quite rough, which they may 

We'll never give up on these kids
Nor will You for You promised them joy
For we know it was true, when they said "Yes" to You
Though the enemy seeks to destroy 

We'll not quit as we intercede
For You are their Savior indeed
Though it may take years, We give you our fears
As we trust every moment we plead 

And so in the gap we will stand
Heeding your every command
With help from above, We unconditionally love
And soon they will reach for your hand.

Welcome to the Kids with Vents Prayer Circle Blog!

Welcome fellow prayer warriors!  We have a number of prayer requests already.  A Blog was the easiest way to let all our members and their families, church prayer groups, and friends, etc. see the group's prayer needs.  We won't be posting pictures, locations, or last names, however, for privacy reasons.  


I will edit and add posts as needed to include changes, additions, and praise reports.  Just email me at Kids_with_Vents@yahoo.com with anything you want revised.  There is a music player filled with a variety of Christian music at the bottom of the page. Let me know if there are any other songs that you would like added (and also if there are any you really want removed!)

We are also going to be starting a great program called Blogging through the Bible in 90 days!  Did you know that you can actually read the entire Bible in just 90 days by reading about 12 pages a day?  We will be starting a bit later than most of the other groups to allow time for everyone to get ready, but I will post the daily reading assignment and message as we go along.  We will start on August 15, 2010, and should finish on October 13th!

Have a Blessed Day!